Home News About Partners Contact  


Unlock the Potential of Your Rare Disease Research Data


Data Sharing

Data Sharing

In the realm of rare disease research, every data point is invaluable. Our platform offers a secure and efficient solution for storing and sharing your research data with approved researchers worldwide. By making your data accessible, you not only comply with the growing mandates from funding bodies and research councils but also amplify the impact of your work.

Empowering Researchers and Enhancing Discoveries

Our platform is designed to foster collaboration and innovation. Journal publishers increasingly require that data underpinning research findings be made available in open access repositories. By publishing your data on our platform, you ensure that others can replicate, validate, or build upon your results. This transparency enhances the credibility of your research and accelerates scientific progress.

Future-Proof Your Research

Data created for one research purpose can often be re-invented or re-interpreted for future studies. By sharing your data, you open doors to new possibilities and unforeseen applications in contexts that are not currently envisaged. Your contribution could lead to breakthroughs in unrelated fields, sparking innovation and driving the scientific community forward.

Secure and Auditable

We understand the importance of data security and integrity. Our platform is built with robust security measures to ensure that your data remains confidential and protected. Every upload and download is fully auditable, providing a transparent trail of data transactions. This not only assures you of the highest standards of data governance but also instills confidence in those who access your shared data.

By sharing your data through our platform, you become part of a collaborative effort to accelerate discoveries and improve lives. Embrace the power of data sharing and let your research make a lasting impact.




Recent News

Jul 1, 2024 The RDDR is now live. https://theRDDR.org

Jun 1, 2024 Coming soon...

Apr 24, 2024 CLIRINX & CRID feature in new major SCN2A-related publication.

Mar 20, 2024 CRID 'Clinical Research ID' hits 4000 CRID identifiers!